WEBINARS

The Children's Cardiomyopathy Foundation (CCF) is pleased to offer webinars as a patient support resource. Webinars are available at no cost and are open to parents, friends, relatives, and professionals registered with CCF.

Recorded webinar sessions are available to those unable to attend live. Click on the below links to view past webinars.

2020

Updates in Genetic Testing Related to Pediatric Cardiomyopathy
Dr. Wendy Chung & Dr. Teresa Lee
New York Presbyterian Morgan Stanley Children’s Hospital
October 22, 2020

Supporting Your Diagnosed Child: Suggestions from a Patient
Mike Papale
In A Heartbeat
September 17, 2020

Research Study Update: Psychological Stress in Pediatric Cardiac Patients and Caregivers During COVID-19
Melissa Cousino, Ph.D.
Kurt Schumacher, MD
C.S. Mott Children’s Hospital
August 19, 2020

COVID-19 Updates for Cardiomyopathy Families
Dr. Daphne Hsu & Dr. Neha Bansal
Children's Hospital of Montefiore
June 4, 2020

Emotional Considerations for Pediatric Cardiomyopathy Families During COVID 19 and Beyond
Dr. Debra Lefkowitz
Children's Hospital of Philadelphia
May 13, 2020

Educational Considerations for Your Child: IEP/504 Information For Every Transplant Family
Stacy Hillenburg, M.Ed, DT
Right Start Pediatric Therapies
April 23, 2020

Financial Considerations: Top Things to Help with Transplant Finances
Rick Lofgren, MBA
Children's Organ Transplant Association
Allison Pela, BA
Phoenix Children's Hospital
April 22, 2020

COVID-19 and Pediatric Cardiomyopathy: Information and Updates
Dr. Daphne Hsu & Dr. Margaret Aldrich
Children's Hospital of Montefiore
March 31, 2020

Updates in Medical Management in Pediatric Cardiomyopathy
Dr. Beth Kaufman
Lucile Packard Children's Hospital, Stanford University
February 28, 2020


2019

Living with Pediatric Cardiomyopathy: Exercise & Sports Guidelines
Dr. Danielle Burstein
Children's Hospital of Philadelphia
December 4, 2019

Pediatric to Adult Care: Tools for Transitioning
Dr. Leigh Reardon
UCLA Children’s Hospital
September 24, 2019

Emotional Considerations for Pediatric Transplant Families
Melissa Cousino, Ph.D.
C.S. Mott Children’s Hospital
April 26, 2019

Bridging to Transplant: Heart Failure & VADs
Dr. David Peng
C.S. Mott Children’s Hospital
April 25, 2019


2018

Overview of the PANORAMA-Heart Failure Research Study
Dr. Robert Shaddy
Children's Hospital Los Angeles
December 19, 2018

Exercise and Sports in the Cardiomyopathy Patient
Dr. Sharlene Day & Dr. Rachel Lampert
University of Michigan/ Yale School of Medicine
May 15, 2018

Adherence and Transition Considerations
Diana Shellmer, Ph.D.
Children’s Hospital of Pittsburgh at UPMC
April 24, 2018

Child Life: Services and Benefits to Patients & Families
Brittany Smith, MA, CCLS
Ann & Robert H. Lurie Children’s Hospital
April 23, 2018

Overview of Pediatric Heart Transplants
Dr. Betsy Blume
Boston Children’s Hospital
March 5, 2018


2017

Coping with a Cardiomyopathy Diagnosis
Dr. Sonia Monteiro
Texas Children’s Hospital
November 30, 2017

Developments in Research & Treatment in Dilated Cardiomyopathy
Dr. Jeffrey Towbin
LeBonheur Children’s Hospital
September 21, 2017

Left Ventricular Non-compaction Cardiomyopathy in Children
Dr. John Jefferies
Cincinnati Children's Hospital
August 23, 2017

Genetic Testing for Cardiomyopathy Families
Allison Cirino, MS, LGC
Brigham & Women's Hospital
March 29, 2017


2016

Navigating Disability Benefits
Deanna Power
Disability Benefits Help
November 16, 2016

Overview of Pediatric Cardiomyopathy
Dr. Elfriede Pahl
Ann and Robert Lurie Children's Hospital
September 22, 2016

Coping with Loss
Dr. Donna Schuurman 
The Dougy Center 
April 5, 2016


2015

Preparing for Transplant Part 1
Preparing for Transplant Part 2
Dr. Joseph Rossano
Children’s Hospital of Philadelphia
September 15, 2015


2014

Exploring Cardiac Imaging
Dr. Brian Feingold & Dr. Timothy Wong
Children's Hospital of Pittsburgh/University of Pittsburgh Medical Center
December 8, 2014

Pediatric Cardiomyopathy 101
Dr. John Jefferies
Cincinnati Children's Hospital
September 9, 2014

Living with Chronic Illness
Dr. Anne Farrar-Anton
Joseph M. Sanzari Children's Hospital, Hackensack University Medical Center
June 17, 2014